California Health Care Data
- California Office of Statewide Health Planning & Development (OSHPD)
Confidential: 2005 – present, certain files available since 1983
Encounter visit records from licensed general acute care hospitals, emergency departments, and ambulatory care surgery centers in CA. Many facilities that are called ambulatory surgery centers are not required to be licensed as surgical clinics, and do not report data to OSHPD.
OSHPD maintains two privacy levels of data files, and these privacy levels determine the availability of data and access procedures.
Confidential Patient-level Data Sets are available for free to researchers associated with nonprofit educational institutions and to state agencies. OSHPD will not release Social Security number and does not list other identifiers in the data documentation. Eligible researchers must request the data through OSHPD and obtain approval for their research protocol from the state Internal Review Board for the California Health and Human Services Agency, also known as the Committee for the Protection of Human Subjects (CPHS). The Research Data Set Request process, including all necessary forms, is detailed here.
Research Datasets are restricted to “minimum variables necessary”. OSHPD links patient data to birth and death certificate data, but the linked data files are only available to qualified researchers through requests submitted to OSHPD and must be reviewed by the California Department of Public Health Vital Statistics Advisory Committee.
For university researchers, it takes approximately 6-9 months to receive confidential patient-level datasets after submitting a request, dependent on corrections needed.
Patient level data is generally available annually by Mid-July for eligible requestors. Linked birth data is current through 2012. Linked death is current through 2013.
OSHPD no longer charges for patient-level data sets ordered or filled on or after 7/1/2018 for eligible requestors. This includes data sets for Patient Discharge Data sets (PDD), Emergency Department Data (EDD) and Ambulatory Surgery Center Data (ASD) for eligible requests for Limited Data Sets (formerly AB2876) and Research Request (formerly IPA) processes. There are no refunds for data requests fulfilled prior to midnight on 6/30/2018.
The three main files provided by OSHPD are Patient Discharge Data (PDD), Emergency Data (ED) and Ambulatory Surgery Data (AS). For a full list of variables, see OHSPD's Data Documentation Page, which hosts an excel file of the Patient Data Master Variable Grid, 2018 PDD Data Dictionary, and 2018 ED/AS Data Dictionary.
Patient discharge data, race/ethnicity, gender, emergency department data, patient demographics, diagnosis codes, MS-DRG, ICD-9, ICD-10, admission dates, discharge dates, hospital identifiers, payer information, clinical information, ambulatory surgery center data, outcomes related to Coronary Artery Bypass Graft (CABG)
Pollack, Craig E., Shawn Du, Amanda L. Blackford, and Bradley Herring. 2019. “Experiment to Decrease Neighborhood Poverty had Limited Effects on Emergency Department Use.” Health Affairs 38(1): 1442-1450. doi: 10.1377/hlthaff.2019.00452.