Cardiac Arrest Registry to Enhance Survival (CARES)
- Emory University Woodruff Health Sciences Center
All non-traumatic out-of-hospital cardiac arrests, where the patient receives resuscitative efforts from first responders or EMS, or is defibrillated prior to EMS arrival
Researchers may request de-identified CARES data by state or nationally. To request data, researchers must submit a project proposal to the CARES Data Sharing Committee (see Appendix B of the CARES Data Sharing User Guide). To inquire more about the national data set, researchers should contact the Director of Data Management for CARES. To inquire about state-specific data, researchers should contact the respective CARES State Coordinator, who can be found on the contact page.
If the proposal is approved, researchers must secure a Non-Disclosure Agreement (NDA) before receiving the requested de-identified data set. Within three months of receiving the data set, the lead researcher must obtain Institutional Review Board (IRB) approval from their institution.
Abstracts must be submitted within three months of the date that the data set was provided, and draft manuscripts must be submitted within nine months of the date the data set was provided. All abstracts and manuscripts must be reviewed by the CARES Data Sharing Committee prior to submission. Manuscripts must include the words “and the CARES Surveillance Group” in the authorship line following the individual authors, and the "Acknowledgement" section of all manuscripts should reference the CARES participating sites.
Once the application is received, feedback is typically provided within four weeks of submission. If the Data Sharing Committee approves the request, the Data Sharing Coordinator will then provide the requested de-identified data set following a data set review webinar.
Files are updated annually, with updates usually available in early May (e.g. CARES 2018 data becomes available in May 2019).
There is no fee associated with accessing CARES data.
Demographics (age, sex, race/ethnicity), cardiac arrest-specific data (location, type of arrest, witness status, presumed etiology), resuscitation-specific data, neighborhood-specific data (using Centrus Desktop Geocoder, linked to: median household income, median age, race, unemployment rate, educational attainment, etc.).
See a complete list of publications using the CARES data set here.
For an example of research linking CARES data to outside data, see this study linking it to Medicare data using probabilistic matching techniques: Chan, Paul S. et al. 2016. “Long-Term Outcomes Among Elderly Survivors of Out-of-Hospital Cardiac Arrest.” Journal of the American Heart Association, 5. doi:10.1161/JAHA.115.002924.